My days usually start with checking in with mom and seeing how she slept. It's weird because she used to be up at the crack of dawn and it was always her calling and waking me up, now the roles are kinda reversed. Anyhow, she had decided sometime in the last 12 hours since I'd seen her last she wanted to have my dad, my brother and his wife's birthday dinner. She had decided that with me having to report for school next week it would just be too busy. So I told her I'd be out shortly to pick her up to take her to get her groceries.
I could tell when I got there it wasn't going to be a great day. She had a mix up with her meds and was just overall frustrated. But regardless of how many times we tried to tell her to do the party next week her mind was made up. So off we went. Guys, we left her house at 10 AM ... we got to Walmart about 1:30, I got her home about 3:30 and by the time I got her groceries unloaded and put up it was 4:30 before I got home in time to make my dessert and turn around and get back out to her house for the party. These are my days.
She's still super emotional. I can't decide what I think is going on. I'm still hoping it's a medicine issue, but it's pretty rough to deal with at times. We did get into Dr. Wu at Texas Tech Neurology Clinic. He is supposed to be the best of the best. They were able to work us in on August 13. For all my teacher friends reading that, yes it is the SECOND day of school. This are the moments I throw my hands up and say, "Seriously, God?!?!?!?" But my principal was amazing and for that I'm so grateful.
I'm hopeful about this trip. We want to be doing anything we can. This doctor seems to know a lot about special dementias and so I'm hopeful he will have some things for us to try. As someone reminded me after I posted about this last, there is no cure. Thank you for that by the way. I'm pretty well aware. I do; however, love being reminded not to get my hopes up for something nonexistent. But at the end of the day we'd really be rather doing something even if it doesn't make much difference because then at least we feel like we are fighting instead of just sitting silently and letting this thing win. So we will continue to seek out treatment and options and second opinions and we may end up broker than broke at the end of the day but at least we can say we tried.
I wrote last week about my frustration with Chris not being able to find a job. You guys are so amazing. We've gotten phone calls and messages from people trying to help us find something. We are so appreciative. Just knowing that people are looking out for you makes you feel somehow more secure.
There are days it is tough! There are weeks when his paycheck doesn't even cover the gas it cost to drive to his jobs...but God has proven that He has not abandoned us yet. Last week we got a refund from a hospital bill that they say we paid too much on ... we didn't. This week we unexpectedly found a card addressed to Mr. and Mrs. Chris Hayes in our mail. It was post marked OKC and inside were two walmart gift cards with the note, "Have a blessed day." It's these things that God uses to remind us He's still got our backs, even on the days it feels like he doesn't. It may seem small and insignificant to some, but God is using it in big ways to restore our faith in Him and to draw us closer. So thank you...whoever you are. I know God is going to bless you in return for being faithful to Him.
The party went off fine. It was just our family but there were no major issues which was nice. It's always fun to watch my dad and my brother interact with Asher. They really enjoy him so much more now that he's walking and talking. He thinks those two hung the moon. So it's pretty precious.
We are anxious to get back into a routine next week and see how that helps us all. I've still got a to do list a mile long but I'm hopeful I'll get to mark some things off in the next few days! :)
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